Ehlers-Danlos Syndrome | Ehlers-Danlos Aus

Jul 18, 20231 min read

This Week in Research -July 03

Recent researc articles in Ehlers-Danlo

Jun 28, 20231 min read

This week in Research

A regular update on recent Ehlers-Danlos Syndrome research

May 6, 20233 min read

Pediatric joint hypermobility: a diagnostic framework and narrative review - summary

A summary of the framework diagnosing the paediatric population who have geeealised joint hypermobility

May 5, 20232 min read

Zebras

Why do people with Ehlers-Danlos Syndrome (EDS) call themselves "Zebras"? This is based on an old medical quote stating "when you hear...

Feb 7, 20233 min read

Ehlers-Danlos Tubies Stories

During Feeding Tube Awareness Week some of our Ehlers-Danlos warriors share stories with feeding tubes caused by complications from EDS

Feb 7, 20233 min read

Feeding Tubes and Ehlers-Danlos Syndromes

Information on some of the types of feeding tubes rhat might be required in some EDS patients with gastro-motility issues.

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Dec 21, 20222 min read

Review of Conservative Therapies for EDS Pain Management

Summary of review on conservative pain therapies researched for Ehlers-Danlos

Dec 4, 20222 min read

OSA and EDS

Obstructive Sleep Apnoea (OSA) is a common sleep-disordered breathing issue. A quick overview of EDS and OSA research.