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Kirstin Maltby
May 5, 20232 min read
Zebras
Why do people with Ehlers-Danlos Syndrome (EDS) call themselves "Zebras"? This is based on an old medical quote stating "when you hear...
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Kirstin Maltby
Feb 9, 20232 min read
Tubie Stories - Kristie
Kirstie’s story on having a feeding tube with EDS for Feeding Tube Awareness Week.
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Kirstin Maltby
Feb 7, 20233 min read
Ehlers-Danlos Tubies Stories
During Feeding Tube Awareness Week some of our Ehlers-Danlos warriors share stories with feeding tubes caused by complications from EDS
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Kirstin Maltby
Feb 7, 20233 min read
Feeding Tubes and Ehlers-Danlos Syndromes
Information on some of the types of feeding tubes rhat might be required in some EDS patients with gastro-motility issues.
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