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Kirstin Maltby
Jun 28, 20231 min read
This week in Research
A regular update on recent Ehlers-Danlos Syndrome research
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Kirstin Maltby
May 6, 20233 min read
Pediatric joint hypermobility: a diagnostic framework and narrative review - summary
A summary of the framework diagnosing the paediatric population who have geeealised joint hypermobility
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Kirstin Maltby
May 5, 20232 min read
Zebras
Why do people with Ehlers-Danlos Syndrome (EDS) call themselves "Zebras"? This is based on an old medical quote stating "when you hear...
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Kirstin Maltby
Apr 18, 20234 min read
Foggy, Faint, Fatigued & Adrenaline - A Book Review
A summary and quick review of Foggy, Faint, Fatgiued and Adrenaline
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Kirstin Maltby
Feb 9, 20232 min read
Tubie Stories - Kristie
Kirstie’s story on having a feeding tube with EDS for Feeding Tube Awareness Week.
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Kirstin Maltby
Feb 7, 20233 min read
Ehlers-Danlos Tubies Stories
During Feeding Tube Awareness Week some of our Ehlers-Danlos warriors share stories with feeding tubes caused by complications from EDS
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Kirstin Maltby
Feb 7, 20233 min read
Feeding Tubes and Ehlers-Danlos Syndromes
Information on some of the types of feeding tubes rhat might be required in some EDS patients with gastro-motility issues.
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Kirstin Maltby
Dec 21, 20222 min read
Review of Conservative Therapies for EDS Pain Management
Summary of review on conservative pain therapies researched for Ehlers-Danlos
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Kirstin Maltby
Dec 4, 20222 min read
OSA and EDS
Obstructive Sleep Apnoea (OSA) is a common sleep-disordered breathing issue. A quick overview of EDS and OSA research.
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Kirstin Maltby
Oct 12, 20222 min read
Nutrition Review for Hypermobile EDS and Dysautonomia Patients
A review in 2021 by Toan Do, et al investigated the nutritional needs of the two overlapping conditions Dysautonomia and Hypermobility...
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Kirstin Maltby
Oct 9, 20223 min read
Ehlers-Danlos and it’s Impacts on Social Participation
hEDS/HSD and its impact on social participation and interpersonal interactions and relationships.
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